To keep everyone who loves me up to date, Mommy and Daddy have decided to document every day of the rest of my life with this blog....

Monday, February 20, 2012

Weekend with Daddy

With Mommy and big brother Brody visiting Nana and Pop-Pop in Florida, I got to spent the weekend with Daddy!  Pop-Pop sent Daddy a picture of Mommy and Brody at the Naples Zoo today.  I sure wish that I could have made the trip too.  I miss getting outside.  Hopefully it wll be spring time soon and I can sit out back.  Unfortunately, I was fighting a fever off and on for most of the weekend, which made my heart rate awfully high and Daddy awfully tired.  The fever makes me very uncomforatble and Daddy to give a bunch of tylenol and ibuprofen to bring the fevers under control.  My friend Marsha came over on Saturday evening to watch me so Daddy was able to go out for a while with a couple of friends and grab some dinner.  My fever had gone down at that point and I had a good several hours with Marsha.

Overall I am doing about the same, but I think that I am beginning to breakthough on the current medications I'm taking.  My seizures are becoming more outward and I sometimes shake all over and sometimes  just kinda lock up.  Daddy thinks that we may need to talk with Dr. Gien soon and increase some of the doses.  We're going to see how it goes for a few more days and then decide on what we are going to do.

Today was a pretty good with my Monday Nurse Joy.  I always seem to have good days wth her.  When Daddy got home from work and Joy left, I decided to poop a couple of times just to make Daddy work a little bit more....hahahahaha  I didn't show it, but I was laughing on the inside :).  I am having a few problems this evening, but not too bad.  Lately I have been pretty weak and spitting up the mucus from deep down in my throat is becoming much harder.  We often use albuterol nebulizer treatments to loosen things up and that helps me get the bad stuff out.  Hopefully that works again for me tonight.



I miss my Mommy and Brody, but I hope that they are having a good time in sunny FLA.  Enjoy Disney World Brody. I want a full report when you get back.....and a Mickey Mouse doll too!  Time for sleepies.  Good night.

1 comment:

  1. We miss you too my love! Don't worry, mommy and brody got you lots of surprises. We can't wait to hug and kiss you again.

    Love, mommy and Brody

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