I had another rough night during the last hour or so Paula was taking care of me. I was so stuffed up that the suctioning and my oxygen wasn't helping to bring my oxygen stats up high enough. We changed positions and made lots of adjustments but nothing seemed to work. It wasn't until later in the morning that I was able to keep my oxygen stats consistently up high enough and that was because I got a bath. I really don't like the actual bath, but it helps get moisture in me and relaxes me enough that I am able to clear out all the mucus that has built up over the night.
I was pretty good for my nurse Joy today and Mommy took out my tube after my 5pm feeding since the tape on my face was coming loose. I started to have problems after that. I was having more seizures and needed suctioning it seemed like every 10 minutes. Mommy put a new tube back in and started my 8pm feeding and it didn't go so well. It seemed like every few minutes I was coughing something up and needed suctioning. I now have only a few mls left and it has been a very tough fight to get this meal down.
I hope I am able to relax and fall asleep soon and so does Mommy!
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