Tessa Reed Shea's Documentary: Happy Mothers Day!

Sunday, May 8, 2011

Happy Mothers Day!

Happy Mothers day to all the Mommy’s out there! Mommy would like to thank her Mommy for bringing her into this world and teaching her how to be such a great Mommy! Mommy would also like to thank Nana Shea for giving us Daddy and making him the best Daddy in the whole world.

I would also like to thank Nana Reed and Nana Shea for coming to visit me and helping take such wonderful care of me. I enjoy every second I get to spend with you! You are both the best Nana’s any granddaughter could ask for.

Mommy said from now on she is going to cherish every Mother’s day as a celebration of the fact that she can be a Mother. Not everyone gets that chance and she is so grateful that she and Daddy have Brody and I here with them today.

So we are all going to spend the day together snuggling and relaxing as a family! Oh, and Daddy is going to go grocery shopping for Mommy too…and maybe do some laundry.

Here are some fun pictures to enjoy!

1 comment:

glisMay 10, 2011 at 8:29 PM
Well Tessita, you and Brody got the coolest and most loving mamma you could have dreamed of. Of course your daddy has done stelar things, but he'll get his praise day soon :)
So fun to celebrate in the warm arms of your loving parents, neat bro and fuzzy friend.
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My Story

I was born on January 18, 2011 and weighed 6lbs 14.5 oz and was 19.75" long. I was born with lots of fluid in me and no desire to suck or swallow. It wasn't until 12 hours after I was born that doctors started to worry about me. I had an MRI, CT scan and EEG and they discovered severe damage to the thalamus in my brain and diffuse white matter.

I spent a month at the Children's Hospital NICU and they sent me home with a nasal gastric (NG) tube because I still couldn't eat. I started to make a little progress drinking from a bottle at home (10 mls at a time) and then I got the flu and ended up back at the hospital.

It seemed like just after the flu I started arching much more than I had before and lost all desire to want to eat with a bottle. My arching episodes got much worse and Mommy and Daddy thought I had reflux or maybe a stomach ulcer from my NG tube. We scheduled surgery for a stomach feeding tube (G-tube), but ended up at the emergency room because I was arching so much and started to have trouble breathing.

When we checked into the hospital for the 3rd time, they gave me morphine to see if it would take away any pain I might be having from my NG tube. When that didn't stop my arching, they knew something else was wrong. They hooked me up to an EEG and found out that I was have lots of seizures, abnormal brain activity and something called hypsarrhythmia.

The doctors left the EEG on for several days to study my brain activity and my brain activity was something most doctors at the hospital don't see very often. That is when they diagnosed me with Ohtahara Syndrome and also a form of West Syndrome. The seizures are a side effect from my brain injury and my prognosis is not very good. Mommy and Daddy from the advice of some amazing doctors, have decided to bring me home to spend time with my family and experience as much love as I possible can.