After my first dose of Phenobarbital on Thursday I have been having lots of trouble at night. I start "ramping up" as Daddy calls it around 10pm and I was battling a high heart rate and seizures all Thursday night. My first dose of Phenobarb was a very high loading dose, so I was not able to have my normal Valium doses for 12 hours. My Dr. thinks I was probably showing withdraw symptoms on Thursday night and Friday morning. I had a very high heart rate on Friday morning and we decided to go back to my higher dose of Valium.
Friday night was no different. Mommy pulled me in bed with her because I was having seizures and doing my sigh/cry sounds after every spasm. I don't make too many noises, but when I do, it is usually because I am upset and it was breaking Mommy and Daddy's heart to hear me like that.
I eventually calmed down after my midnight Valium dose. But woke back up around 4am with distressed breathing and a high heart rate. After a call to the Dr., he decided to try another loading dose of Phenobarb. I had to make it through the morning so we tried, Versed which didn't work, many nebulizer treatments, and finally morphine. Here I am getting my nebulizer treatment this morning which helped in the short term, but my distress and high heart rate kept coming back.
The morphine took forever to really kick in and after about an hour or so I finally gave in and fell asleep. I just had my 2nd loading dose of Phenobarbital and we are still waiting for the all day relief from my distress, labored breathing, high heart rate and we really want to turn off my oxygen. Fingers are crossed that the new drug will work. Dr. Gien said that we need at least six doses to get the drug in my system before we make any more decisions.
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