My day was up and down yesterday. I was having seizures and respiratory trouble whenever I was awake and would have periods of calm sleeping in between. It seemed like every few hours I was up and seizing. We tried a nice warm bath in the morning which didn't help. Brody even tried to give me toys and share his own but I just couldn't relax.
We even unwrapped my new barbie doll that Nana Shea brought me on her last trip here. Brody was so excited to give it to me but all that excitement and commotion made me a little more agitated.
Some exercises and stretches and my noon Valium helped to calm me down a little and I was able to sleep for a bit.
My morphine dose doesn't seem to be helping anymore. I got it a few times today and it isn't calming me down like usual. We will talk with the Dr. tomorrow and see if we might need to increase both my morphine and valium doses.
My seizures were pretty awful again last night. It took me a while to get calmed down from my after dinner episode and I was sleeping nice and peacefully until Mommy and Daddy moved me into my bassinet. Two hours went by with lots of suctioning, morphine and hand holding and the seizures seemed like they would never stop. Finally, with my midnight valium dose about 30 minutes early, I started to quiet down and my eyes got heavy. It seemed like it took forever, but I finally fell asleep until about 6am....then it all started over again.
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