Mystery

That is what my Daddy always calls me and it turns out to be true over and over again.  I had a very rough night last night with my nurse Beth.  I got multiple doses of my heavy hitting drugs like versed and morphine just before midnight along with some nebulizer treatments and I was finally able to cough up some thick congestion.  I went through the same episode around 3am and calmed back down around 5am.  I had a fever off and on all night along with low oxygen and a high heart rate.  Daddy talked to Dr. Gien this morning just to give him a report on Tessa's night.

This morning Mommy and Daddy talked to the Dr. again and discussed some of the options since we have been worried about my water retention, fever, increased heart rate, low oxygen, overall sleepiness and labored breathing.  We decided against some of the tests since nothing would give us any definite ideas on exactly how much time I have left with my family.

We did decide to have a special visit with Dr. Gien.  He listened to my heart since we thought I might be having signs of heart failure but he said my heart sounded strong and my lungs still sounded bad.  He was unsure if it is entirely from the pneumonia or maybe from ineffective breathing causing some collapse in my lungs.  My fever could be either from an infection or could be a side effect from my brain damage or a combination of both.  As for the swelling, that may be because I haven't been eating enough, so we are try to increase my milk intake to see if that helps.  Again, I am still a mystery.

So we continue on with our days.  I have yet to really open my eyes in two days probably because my medications have me very sedated, but the alternative is worse.  When I'm "in the throws", as Daddy calls it, it is awful so being able to rest is a much better alternative.  My evening so far has been pretty good.  My heart rate is still high and we started my fever reducing meds to try and prevent a fever tonight as recommended by Dr. G.  Fever always makes things more difficult.

Mommy was able to get some pictures of me today while I was sleeping.  You can see the puffiness around my eyes.  Hopefully that goes away with some food and doesn't get worse.

Thank you Dr. G for our visit today.  For some magical reason I am always on my best behavior when you are around.  I am truly blessed to have you in my life and appreciate all you have done for me.