I haven't been eating much lately.  Yesterday I was able to get down maybe 6 ounces of milk and another 3 ounces of pedialyte.  I have been awake and agitated a lot and we have had a hard time keeping my oxygen status up despite the fact that I am on about 4 liters of oxygen.

Last night started out rough since my pulse-ox kept alarming because my oxygen was dropping pretty low.  Mommy was just about to pick me up and snuggle me when I coughed up a big glob of congestion (finally)!  It took me another hour or so to really calm down but I was fast asleep just after midnight.  I was pretty peaceful for a while but then woke up and could not go back to sleep.  Mommy gave me some Versed but I don't think my dose is high enough because it took me another hour or so to fall asleep again.

I hung out with Daddy today so Brody could go with Mommy to see Thomas the train.  I had a rough start to the day but did manage to sleep a little.  I only had about 6 ounces of milk again today and maybe a little more pedialyte than yesterday.  My fever came back this afternoon so I got a cold rag for my head which usually calms me down.

My respite care provider Marsha came this evening so Mommy, Daddy and Brody could go out to dinner.  I wish I could go with them but as you are aware, I don't travel well (or lightly).  I just spit up a bunch of congestion so I think I am finally ready for a little snooze.  I haven't slept much at all today so things are looking good for a restful evening.