Snuggled

Today was very similar to yesterday.  I had a hard time with my feedings and have been very agitated and uncomfortable when I am awake.  I am still experiencing spikes and dips with my heart rate which don't seem to make any sense.  At first we though there was something wrong with my pulse-ox, but my nurses have been checking my pulse during these episodes and have noticed that is can be irregular during these times.  This is something we are going to discuss with my neonatologist tomorrow.

I have significant damage to the thalamus in my brain which controls all the signals my brain sends out.  When we first found this out, the doctors told Mommy and Daddy that as my brain matures and things change, the signals that my brain is sending out now may also change.  So signals that let my brain tell my body to control my temperature or to take a breath may start to malfunction.

I took only four feedings today of 60mls each which is well below half of my normal feeding amount.  I don't know if I will be back up to the "normal" amount for a really long time.  We are still trying but my body just isn't ready for all that food yet.  I am still on oxygen and needing a few nebulizers a day to help keep my congestion loose.

After dinner I got to enjoy some good snuggle time with Mommy.  Because I have been so sick the past few weeks, Mommy and Daddy haven't been able to hold me since I didn't like movement and they were constantly having to give medicines, suction me, check my temp, etc...  I even got a big snuggle from my big brother Brody after he enjoyed the last yummy ice cream cone cup cake (yup, you heard that right!), courtesy of Theresa.

Thank you Aunt Kai for the lovely card.  We wish you all lived right around the corner too:)  Please give my cousins Aidan and Hannah a big kiss for me - even though I have never met them, I still think about them all the time.