Mommy spoke to my neonatologist, Dr. Gien, this morning to discuss my feeding issues, increased seizure activity and heart rate decreases. He is concerned that I am not eating enough and getting dehydrated. He said my dehydration can cause an increase in potassium which could be causing my heart to stop beating. Mommy and Daddy have been trying to get enough fluids in me but my increased seizure activity has made it very difficult since I usually spit up any food I am given when I am awake and having seizures. Plus, if I only drink pedialyte and can't eat, then I will start to lose weight and fast.
Dr. Gien increased my Valium dose and my Versed dose to help with the seizures but it doesn't seem to be helping yet. I am awake now and making lots of little noises. When I first starting making noises a few weeks after I was born, Mommy and Daddy were so happy, that is, until they learned that it was seizure activity.
I got half way through a feeding tonight and Daddy had to quit. It was just too much for me to handle since I am awake and agitated now. He may try and give me my first increased dose of Versed to see if it works. He is just scared of the heart rate episodes that happened last night.
Tessa-Happy 8 month birthday to you!! We love you. Love, Aunt Kathy and Uncle Eric
ReplyDeleteThank Aunt K & Uncle E - I miss and love you too!
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